I am intolerant to wheat, gluten, eggs, cow's milk and pineapple...my journey from di [Archive]

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**purpleprincess**

21-09-2009, 03:52 PM

I have suffered with IBS for a long while and didn't know anything about it really, let alone controlling it with diet. So did some research as soooo fed up with stomach pains etc etc and found that I can help my symptoms with diet.

So, saved up some money and got a York Test done and got my results. And honestly, it makes so much sense now! I had suspected a couple and it's good that they are confirmed.

My intolerances are wheat, gluten, egg white, egg yolk, cow's milk and pineapple.

I'm just after help and advice from other people that have to cut things out of their diet and how they cope. And what sneaky things have the above in, what can I get away with etc. I've got soooo many questions as well!!

Today has been my first day cutting all of this out and so far I've noticed a difference already so it can only be up from here!!

Thanks in advance.

Jax

21-09-2009, 04:35 PM

Hi purpleprincess, welcome to the forum :)I have suffered with IBS for a long while and didn't know anything about it really, let alone controlling it with diet. So did some research as soooo fed up with stomach pains etc etc and found that I can help my symptoms with diet.

So, saved up some money and got a York Test done and got my results. And honestly, it makes so much sense now! I had suspected a couple and it's good that they are confirmed.

My intolerances are wheat, gluten, egg white, egg yolk, cow's milk and pineapple.Wow you sound so similar to me! I had it so bad back in 1996 that I fainted.........so embarrassing as it happened both times while I was on the toilet, once I smacked my head on the sink as I passed out :o It was then that I had to get myself really sorted as I was a single parent, so passing out and hitting my head in a locked bathroom is not good! I remember hating going out and socialising, as I never knew when I'd have to run to the loo, or I'd be so constipated and bloated I'd be uncomfortable all night and made me miserable :( NOT good times!

I'm just after help and advice from other people that have to cut things out of their diet and how they cope. And what sneaky things have the above in, what can I get away with etc. I've got soooo many questions as well!!

Today has been my first day cutting all of this out and so far I've noticed a difference already so it can only be up from here!!
That you feel good already cutting some of them out is awesome...........and should be a great bit of motivation for you ;) I have to admit, I stumbled my way through it, never really finding the info I needed so I really speak from my own experiences, and what might work for one may not work for another...........so there seems to be a lot of trial and error.

However, the link for everyone seems to be processed foods! I can't emphasise enough that we should all be getting back to basics with fresh fruit and veg, nuts and seeds, sea vegetables and the not so well known grains such as spelt and quinoa. Gillian McKeith was a godsend for me and set me on the road to superfoods and better health (although I was already a vegetarian) :) Now I have gone even further and have entered the world of raw foods and have discovered even better health (far more info on that in the section at the top of the forum).

Another area I had to really really work on (and Godders would say I haven't conquered yet) is stress :o :rolleyes: I look back and it's no wonder I ended up the way I did with all the life stressors coming at once. I still find it flippin hard controlling stress, but am a little more aware when I am now;)

Jax

21-09-2009, 05:34 PM

LOL I didn't want to bombard you with a massive post so I've broken it up :o

To start with I wondered how the heck I was going to manage cutting out wheat, I struggled as I didn't have the info and certainly didn't have the internet back then :eek: Wheat is in almost everything, things I would never have thought it would be in!! So I ended up surviving on jacket potatoes and stir fry in the college canteen, and crisps, my oh so helpful GP just said that I could do better and left me to it :rolleyes: :rolleyes:

Then Gillian McKeith came on our screens and I discovered spelt (ancient form of wheat), I felt I still had problems with it though, but the symptoms could have been due to the other foods that I didn't know at that time I was intolerant to. I also discovered quinoa instead of couscous, buckwheat and kamut products in Waitrose, and Free From ranges which were very limited in those days but are quite abundant now.

However, I started looking at some of the labels on some of the Free From products and didn't like what I was reading :eek: most of which I didn't understand!! So with this in mind and that I didn't want my kids eating tons of wheat anymore, I turned to making my own (or getting Godders to make it LOL) with Doves Farm (http://www.rawinuk.com/showthread.php?p=704#post704) and Laucke (http://www.laucke.com.au/) (Lakeland used to stock it) wheat free flours and Orgran (http://www.rawinuk.com/showthread.php?p=703#post703) products (they do an egg replacer too). We had good results from these products and the textures were far better than the already prepared wheat free products. I also used some digestive enzymes that MrsB put me on to which helped when we went out and couldn't gaurantee no wheat - I was dished up a wheat free soup in one restaurant that they proudly set down for me...................and had added croutons to :rolleyes:

LOL now that I have managed to get my body more alkaline (discovered by the nutritionist (http://www.rawinuk.com/showpost.php?p=640&postcount=2)) I've been able to tolerate small doses of wheat, but I've been experimenting with raw food nutrition now, and I can see that my body is responding far better with that way of eating than trying to make eat what society thinks is the norm :o So that's where I am at, at the moment and am leaning more that way, although I do have some wheat and cooked foods from time to time for convenience when we are out and about etc.

I have far more energy than I did years ago, no more debilitating symptoms and don't have to take a lot of antispasmodic pills :rolleyes:

**purpleprincess**

22-09-2009, 10:57 AM

Jax

22-09-2009, 12:06 PM

Thank you for that. Luckily for me, I am already pretty Old Style (you'll know what I mean ;) ) so tend to make most things from scratch which I think will really help. I've been looking through loads of my recipes and thinking "I can just replace that with that.." so that's pretty positive. LOL I certainly do ;) and Money Saving Expert has tons of recipes for those on a budget. Most of the time you can sub with the gluten free products, but occasionally we had disasters, however most of them might've been down to the seal on our oven :rolleyes: As I said sometimes it's down to trial and error and some tweaking. I'm not sure if you have a family, but if you do and you have success with recipes make it for all of them as it will do them good in the long run to reduce their wheat consumption.

It's just daunting, and getting to grips with exactly what has gluten in it, for example I love Guinness :5179: and that is wheat free but not gluten free :( However, reading what you've written, you sometimes eat things you're "not supposed to" for convenience, so I suppose that a rare Guinness will be fine so long as I'm aware that there will be consequences Are you having problems with gluten too?? If so you may be more coeliac than just wheat intolerant, and if diagnosed by GP you can then get prescriptions for gluten free products. Although, again the ingredient list maybe a bit dire :rolleyes: More info at Coeliac UK (http://www.coeliac.org.uk/). As you've picked up, I do eat some of the 'naughty' things occasionally :o mainly because I get embarrassed about people fussing around about what I can eat and going to more effort, or because I get sick to death of having to repeat myself about it. The enzymes I said about really helped with that, and as I became more alkaline I could tolerate all things in moderation a lot better.

I'm really glad I have found this forum though and hope to learn much more and as a result feel much better. It would be so nice not to take so many drugs all the time! It was getting to the point where I would take Immodium before I went anywhere I knew there would be food (like a party or out for dinner) so I didn't have to worry, and I'd take loads of anti-spasmodics everyday to help deal with the pain and cramps. I'd love to stop or reduce this, not to mention it saving me money!!!

I too need to work on the stress factor, as this totally mucks me up. I found yoga really helps though.
Luckily I managed to get rid of the drugs for that quite quickly once I knew what direction to take. Unfortunately I'm back on more for chronic pain from a car accident, so I'm not happy about that at the mo, and I'm due arthroscopic operations on both knees next month so will be taking in anaesthetic for that, hey ho :rolleyes: BIG detox coming up after that methinks!!

Oh yeah, another question, if I am intolerant to cow's milk can I eat things marinated in yoghurt if it's then baked or whatever they do to it? I'm thinking tandoori chicken.

I'm going to book up my nutritionist appointment and see what advice they have.What I've learnt over the years is that goat's milk/butter/cheese/yoghurt is slightly easier to digest if you are absolutely fixed on including dairy, my youngest son used to get really bad eczema with cows milk and since switching to goat milk it's completely gone. I personally use some rice milk and include some goat yoghurt to quell the candida at the moment.

Interesting info and links here (http://www.breakingtheviciouscycle.info/knowledge_base/kb/casein_sensitivity.htm)
More info on Not Milk.com (http://www.notmilk.com/)

But obviously work with the nutritionist that you see as everybody is different ;)

Another option is to look at the vegan recipes for alternatives, they find their way around most things ;) There's a few curry type recipes at Vegan Village (http://www.veganvillage.co.uk/recipes/mains.htm), and if you look through raw vegan recipes you will find that cashews can make dishes creamy etc.

Jax

22-09-2009, 01:45 PM

Ah I should add that haverawcake (http://www.rawinuk.com/forumdisplay.php?f=27) has some digestive enzymes (http://www.haverawcakeandeatit.co.uk/raw_food_uk/SUPPLEMENTS.html) AND she's doing 10% off for signed up forum members at the mo ;)

I'm sure she'd be happy to answer any questions you might have with them too :D

**purpleprincess**

22-09-2009, 06:07 PM

Are you having problems with gluten too?? If so you may be more coeliac than just wheat intolerant, and if diagnosed by GP you can then get prescriptions for gluten free products. Although, again the ingredient list maybe a bit dire :rolleyes: More info at Coeliac UK (http://www.coeliac.org.uk/).
I am cutting out gluten as a result of my intolerance test, my doctor doesn't think I am coeliac, just suffer badly with IBS. I've had a few tests to rule things out, he's a great doctor so don't have any doubts.

As you've picked up, I do eat some of the 'naughty' things occasionally :o mainly because I get embarrassed about people fussing around about what I can eat and going to more effort, or because I get sick to death of having to repeat myself about it.
This is how I feel, I feel like I'm a pain in the ****! But also, I am going to be sad to cut some things out completely:5179: so will probably eat these things rarely :o

It's a shame that people don't know more or that people are not more open to these things. I think that once I get myself sorted and know exactly what I'm eating etc I may feel more confident with deciding what to eat at restaurants etc. My main concern is eating at friend's and family's houses, I can always take my own bits and pieces with me!!:5146:

What I've learnt over the years is that goat's milk/butter/cheese/yoghurt is slightly easier to digest if you are absolutely fixed on including dairy, my youngest son used to get really bad eczema with cows milk and since switching to goat milk it's completely gone.
Funny you should say this, I've currently switched to goats milk, goats cheese and goats yoghurt with no adverse effects so will continue to use these as replacements. However, they are more expensive so have got soya yoghurts as well. I tried the soya cream cheese replacement today and it was vile!! Totally bleurgh!!

Another option is to look at the vegan recipes for alternatives, they find their way around most things ;) There's a few curry type recipes at Vegan Village (http://www.veganvillage.co.uk/recipes/mains.htm), and if you look through raw vegan recipes you will find that cashews can make dishes creamy etc.
We already eat a lot of vegan recipes, mostly because they are cheaper but also yummy! We've thought that we will probably be eating more vegan foods, mostly because it is easier with not having cow's milk and eggs.

Do you blend cashew nuts then to make dishes creamy?

This is day 2 of my new diet and had a good day again, so I am pleased :D

Thanks again :)

Jax

23-09-2009, 11:18 AM

I am cutting out gluten as a result of my intolerance test, my doctor doesn't think I am coeliac, just suffer badly with IBS. I've had a few tests to rule things out, he's a great doctor so don't have any doubts.Ah that's okay then, although cutting out gluten can make things more awkward as any coeliac will tell you. When you go to the nutritionist ask them if they think your body may be too acidic right now. Mine first told me that last year and I'd never heard of it before, I'm going to do a post on the info I have here, that will hopefully explain things a bit more.

This is how I feel, I feel like I'm a pain in the ****! But also, I am going to be sad to cut some things out completely:5179: so will probably eat these things rarely :o

It's a shame that people don't know more or that people are not more open to these things. I think that once I get myself sorted and know exactly what I'm eating etc I may feel more confident with deciding what to eat at restaurants etc. My main concern is eating at friend's and family's houses, I can always take my own bits and pieces with me!!:5146:It's terrible that we are made to feel this way.............especially in the light that what is considered the 'norm' for society isn't actually doing them any good :rolleyes: One day the world will wake up, but I don't reckon that's any time soon as the majority are far too blinkered!

Funny you should say this, I've currently switched to goats milk, goats cheese and goats yoghurt with no adverse effects so will continue to use these as replacements. However, they are more expensive so have got soya yoghurts as well. I tried the soya cream cheese replacement today and it was vile!! Totally bleurgh!!
Do you blend cashew nuts then to make dishes creamy? OMG some of the vegan replacements are foul :4628: I can't do soya milk at all, it's too thick and chalky for my tastebuds, but the soya creem is lovely and creamy, and so is silken tofu. As for the cashews this Nut Mylk (http://www.rawinuk.com/showthread.php?t=278) thread might help explain things better. I think it does help if you have a high powered blender - thread about a couple of the types is here (http://www.rawinuk.com/showthread.php?t=27), but I think I'm right in saying that you can use a coffee grinder or a personal blender (http://www.personalblender.com/main.asp)like Ani Phyo uses. Obviously the high powered blenders take no time at all to do it.

We already eat a lot of vegan recipes, mostly because they are cheaper but also yummy! We've thought that we will probably be eating more vegan foods, mostly because it is easier with not having cow's milk and eggs.

This is day 2 of my new diet and had a good day again, so I am pleased :D

Thanks again :)That's brilliant you are noticing great results already, however one thing I wasn't told about at all until I started reading about raw nutrition, is that when you start 'cleaning' up your diet, your will start clearing out toxins, so if you experience some not so good things like maybe rashes, headaches (although soya can cause them too in some people), lethargy etc, don't give it all up as you should be able to come through it all and feel so much better ;) There's some really useful literature up in the raw section, that can explain this better and look out for sites with info on detoxing - it's another minefield but at least you'll know what might be happening to you.

**purpleprincess**

23-09-2009, 01:10 PM

Ah that's okay then, although cutting out gluten can make things more awkward as any coeliac will tell you. I'm going to try and keep to it and then hopefully after a while I will be able to discover what my tolerance levels to gluten are and try and introduce it a little.

It's terrible that we are made to feel this way.............especially in the light that what is considered the 'norm' for society isn't actually doing them any good :rolleyes: One day the world will wake up, but I don't reckon that's any time soon as the majority are far too blinkered!
I am lucky however as I live near Brighton, and some of the restaurants and cafes are brilliant at catering for people who don't want the "normal" sh1tty food!! And they have a great supermarket called Infinity Foods which does so much stuff! And even in the town I live in, the restaurants are quite accommodating if you give them prior notice. If only this could start spreading to other towns and people became more aware it would make life so much easier for people. It could be part of training that people in food industries are given!

It must be so much more difficult for vegetarians and vegans though if you want to have a meal in a restaurant and you also suffer with intolerances.

You are right, some replacements are vile! Sweet soya stuff I don't have a problem with, the Alpro desserts are nomnomnom! But the savoury stuff just doesn't do it for me.

That's brilliant you are noticing great results already, however one thing I wasn't told about at all until I started reading about raw nutrition, is that when you start 'cleaning' up your diet, your will start clearing out toxins, so if you experience some not so good things like maybe rashes, headaches (although soya can cause them too in some people), lethargy etc, don't give it all up as you should be able to come through it all and feel so much better ;) There's some really useful literature up in the raw section, that can explain this better and look out for sites with info on detoxing - it's another minefield but at least you'll know what might be happening to you.
Ah, glad you said this, been suffering with terrible headaches since I started!! I've been drinking gallons of water thinking that was the problem!

This forum has loads of useful information on it, a godsend to me at the moment!

Jax

23-09-2009, 04:19 PM

Oh wow you're lucky having easy access to Brighton!! Don't forget to review any places you visit back here to help others ;) ;)

And keep us up to date with what you are experiencing cos it just might help somebody else out one day :D

**purpleprincess**

05-10-2009, 08:14 PM

Good evening!

Been very neglectful, life just kinda got in the way. Had a wonderful symptom-free week when I was cutting out all the things I was diagnosed as intolerant to, and then it all went out of the window, it was really weird I just could not stop myself from eating all the things that I knew I shouldn't, and boy did I suffer, but it still didn't stop me. Anyway, have had enough of that and I didn't pay £200 to get results then ignore them so am going for it 100% to implement my new lifestyle from today.

Had a good day, have moved on to soya milk and it's actually ok! I only had it in my tea so far so will update on other dishes!

Had soya yoghurt with fruit for breakfast, baked beans and potatoes for lunch and spaghetti bolognese for dinner. I had Sainsburys FreeFrom corn spaghetti and it was very nice.

Have also booked a Xmas meal out with some girls from uni and the place we are eating are quite happy to use my gravy and sausages and for me to supply a Xmas pud and custard! So am pleased about that, so don't need to miss out.

More updates to follow!!!

Jax

06-10-2009, 09:00 PM

I think to be honest, you have to allow some flexibility to keep a certain level of sanity in all this sometimes :D It's quite difficult to go almost 'cold turkey' with these intolerances or food sensitivites, and then when you're working hard on it, your sypmtoms feel the same..............but keep at it and it will pay you dividends in the end.

As I've told you via pm, I've just had a trying week (healthy eating wise) on a boating holiday, and for convenience mainly because there were a LOT less shops than I was expecting along the waterways, we ate a fair bit in pubs..........which are not known for their flexibilty!! So I think it's a case of going with the flow occaisionally and then once home getting into detox mode ;)

However I'm a bit worried about your Xmas meal out..............if you're providing most of it I hope they aren't going to charge you the same cost as your friends??

**purpleprincess**

10-10-2009, 06:40 PM

I've now done a whole week of cutting out all the things I'm intolerant too and not had a single IBS symptom all week, so there must be something in it.

Yeah, I've been thinking about this Xmas meal as well, and I've decided to just go with the veg and turkey and provide my own gravy, so I don't have to pay for other things that will make my meal more expensive! Although thinking about it I'll have these things anyway for my normal Xmas meal on Xmas Day, hmm........ Not sure what I'll do for a pud yet, the starters are fine.

Good week so far then and slowly getting used to what kinds of things to have for packed lunch now I can't have sandwiches. Going to try making bread next week and see how that works, will keep you posted!!

**purpleprincess**

11-10-2009, 11:59 AM

I have posted on this (http://www.rawinuk.com/showthread.php?p=851#post851) thread about my breadmaking antics!! Rather than repeating myself twice! Will post back here when it's all made and tasted etc! :D

Jax

18-10-2009, 09:08 PM

How's it going pp??

I have to say I have had some relapses recently and itchy eyes and sore throat is back!! :9437: After the op, I'm defo going to go on juices all week!!

karen @rawchocolateheaven

19-10-2009, 11:00 PM

Loads, I reckon I am allergic to everything cooked!!
I get some spectacular bouts of runs and or sick if I eat
Eggs, any meat, wheat ( I actually get severe stomach cramps and gastric cramps with wheat)
Rice, Soya, I get some of the worst (most spectacular symptons) if I combine....
like a BLT sandwich followed by a slice of cheesecake then a lilt!!!
an very old lunch menu, have to think back 10 years for that one
well the cramps start immediately, followed by severe Reflux, to the point of being randomly sick, that comes from a total allergy to pork, even tiny amounts! then after my body has purged both ends, I get acne, and bloatedness!!! mmmm
My dr used to prescribe me litre bottles (2 500ml) of gaviscon!!!

My Cure is eat nothing, let the body fast & rest,
Green juice, light greens, if really hungry heavier starchy root veg

ALL RAW

my "illnesses" have all but gone

Phil Ridley

20-05-2010, 11:39 AM

Hi there. Sorry to hear about your intolerances. Myself? I cured my lactose intollerance with raw milk, because raw milk includes all the digestive enzymes and probiotics that milk needs to digest itself. http://www.realmilk.com and http://www.raw-milk-facts.com

I provide listings of raw milk suppliers here: http://www.meetup.com/westonaprice-london

Also, for other intollerances, I recommend Gut and Psychology Syndrome: http://www.gaps.me

**purpleprincess**

20-06-2010, 09:45 PM

Well, a looong delayed update!! I can eat eggs, pineapple occasionally and gluten is ok, I just have real problems with cow's dairy and wheat so now cut these out completely, and if I do have them boy do I suffer! I have goat's dairy products now and find them just fine.

Been quite a few months now and really notice a difference if I do have wheat or cow dairy, I'm still not very good at eliminating it completely, which is bad because it really makes me suffer. I have also found that if I drink alcohol it affects my IBS too.

Jax

20-06-2010, 10:52 PM

Good to see you back pp, (did see you earlier on mse http://www.rawinuk.com/images/icons/icon12.gif ) have you tried Kara coconut milk, it's amazingly creamy but doesn't taste or smell of coconut, it's in Tesco at about £1.29 for a litre carton.